The current situation of attacking the Chinese blood friend patient directly and surviving: Only 5% can receive treatment

The current situation of attacking the Chinese blood friend patient directly and surviving: Only 5% can receive treatment
Only 5% of the blood friend patients receive treatment It is difficult and very heavy to ask on the means of livelihood
"In my life in 40 years, all memory has something to do with with bleeding. " From storing the only sensible one of jade, he understands, can not run and jump, can't have physical education, can't be pushed and collide like other boys by oneself. In university, store jade, toughen one's scalp previous sections of physical education, one standing long jump as a result only just, causing his hip joint massive haemorrhage, he has lain in bed for two weeks totally this time. "All these, because I am a hemophilia patient, the person like me is close to 100,000 in China, to live is no better than to die in the treatment that if it is effective to get, we! "
Hemophilia comes from the blood a certain factor that can impel the blood to solidify is lacked or reduced. First type hemophilia is the most common hemophilia type, are cause by the fact that the eighth factor of blood coagulation is lacked or the activity is reduced. Hemophilia is a kind of lifetime disease, it is the only effective treatment means to infuse eight factors of blood coagulation at present. Through treating, the patient can be like normal people, create the wealth, the back feeding society. On the contrary, once patient, friend of blood, disable, will become the burden of the society all the life. So, the blood friend patient should not seek survival lonelily, the society should offer them more care, illuminate their glorious life.
The way to seek survival is very difficult to be very difficult
Care about blood friend course to reinvent life in patient, devotes the course of society. In the world nearly 1/4 patient, friend of blood, in China, less than, receive treatment by 5% patient, friend of blood, only, about 90% of the patients have not accepted that standardize the treatment. And exactly so little the eighth factor, can stop massive haemorrhage; Just insist on standardizing the treatment in children one, the deformity needn't take place; Exactly every year 10- 15 therapeutic expenses of Wan, would not block their way to seek survival But this way to seek survival, go up, it is very difficult to be very difficult!
Guan Tao, general secretary of the Chinese blood friend's home, tells reporters, the patient, most blood friends of our country, especially countryside patient of poverty-stricken area very difficult to be treated and cured in time, more than 90% will present the limb deformity. "Shortage of medicines, high medicine price and financial difficulties are main reasons for this kind of current situation. " 90% more than patient because of deformity and reason such as being seriously ill, mainly live on parents. Because of paying the high treatment expenses throughout the year, it is not small number to cause the poor family due to illness.
Without medicines, the blood friend patient is miserable. But from the second half of 2006, because blood plasma raw materials nervous, freeze, be the intersection of people and the intersection of blood coagulation and eight the intersection of factor and medicines, appear as to a cheap one in short supply, a lot of places even breaking medicines. In addition, lack regular complex treatment and let the patients often get half the result with twice the effort. Store the jade and only have an intimate knowledge of this, inject eight factors before bleeding, he only needed a bottle of medicines each time, and inject after bleeding, may want 6 bottles. "The disease cure, stand up right away as firing fighting, just began to be the light fire, perhaps a basin of water can be put out; Want, wait for fire cook heavy, must a lot of ink could be put out. " Chinese Academy of Medical Sciences haematological the intersection of research institute and the intersection of benevolence and Professor Chi Yang, blood of hospital call upon to the media once, it can carry on on prophylactic treatment,these patient can well life like normal people. This is especially important to the little patient of hemophilia.
The barrier blocked on the blood friend patient's road to seek survival is still far above these, because is with high costs, what more than 90% of the patients in China accepted are therapeutic ways of the cold-blooded precipitating and simple blood transfusion thick liquid. But the new blood thick liquid can't adopt the virus to deactivate, because once adopt, various effective compositions in the blood will lose utility. So, guarantee this way does not transmit disease for blood friend patients, the key lies in checking the blood plasma provider strictly. Benevolence professor Chi Yang regrets to say: "Even increase a lot of detection ways now, can't guarantee 100% of blood of the provider's security either, this is a difficult problem in whole world. " So, the risk that the blood friend patient is infected with infective diseases such as AIDS and the third liver,etc. is great. The Chinese blood friend's family has called upon national blood friend patients to carry on the general survey of diseases such as AIDS, third liver, hepatitis B,etc., but because the patients of a lot of blood friends are too frightened to dare or unwilling to check. The intersection of benevolence and Professor Chi Yang say, inject gene recombinate, lower the risk that the virus is infect at the most loud intensity by 8 factor, but its price is relatively high, in addition most areas in the whole country have not included it in the medical insurance formally yet, patient's financial burden is relatively great, so far from popularizing using.

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