A million expenses for medicine can only change the existence predicament of the healthy orphan's disease patient for one year

A million expenses for medicine can only change the existence predicament of the healthy orphan's disease patient for one year
The net friend " L The luxuriant dish " R Reflect to the media, there is special one batch by her recently " L The patient " ,Even for medical worker, such a disease very much difficult to see. This kind of disease is called " L Dagger-axe Xie's disease " ,The brain glucoside lipoprotein of glucose by name deposits the disease again, because the morbidity is extremely low and is belonged to is a rare disease.
" L Rare disease " ,Also called " L Orphan's disease " . As its name suggests, mean the case that the ill rate is very low, rare. According to the definition of World Health Organization, the morbidity of the rare disease is in 0.65%. To 1%. During .
" L The luxuriant dish " R Say dagger-axe thank disease patient if unable to get treatment, bear grow slowly, the intersection of skeleton and the intersection of pathological change,etc. and a series of illness, but so long as get the treatment, the life that can be as healthy as ordinary people. But guarantee the dagger-axe and thank the healthy only medicine price of the life of disease patient is very high, so far, all gets therapeutic domestic dagger-axe and thanks a disease patient and keeps treating by free donations of the American pharmaceutical factory.
Because of go wrong by this pharmaceutical factory production technology, dagger-axe thank the intersection of disease and patient face the intersection of medicines and in short predicament again for the moment. And hide behind lacking the medicine predicament, it is all sorts of deficiency that our country ensures to the rare disease patient.
It is healthy that a million expenses for medicine can only be changed for one year
But an important change at the end of 2009, make Gao Jing high and the ward mate faces the predicament again.
Because the technological problem takes place in the production line, think the production work of Zambia is forced to stop. Strong in Zambia Company and do the best to resume producing, the difficulty of production technology of this medicine is high, the speed of resuming production is relatively slow . At present, being strong in Zambia Company can only guarantee supporting medicines of the urgent serious disease patient.
" In May of this year, medicine that we saved has been used up too, when to resume not knowing. " L Dagger-axe thank the intersection of disease and patient lack, call by first kind in the body " Glucose of brain glucoside lipoprotein enzyme " L Material,and it think but it is exactly supplementary for material in function of Zambia, so thank dagger-axe must take medicine disease patient all the life, stop using medicine, will inevitablely make the disease recur even aggravate. Though it has good health at present that Gao Jing is high, anxiety and Japan fearing the condition recurs are all increased.
The predicament of medicines in short, has initiated high one home of another worry of Gao Jing, from 1999 to the present, Gao Jing high all medicines that use come from, good for the intersection of Zambia and donations of Company, such as calculating according to the market price of medicines, has offer the amount of money Wan and has already been. Such enormous lasting Gao Jing's high life of donation, reality?
" Say the words at all, without the others' donation, our child has not would have been in this world, but we can't only depend on the others' devotion forever either. "
According to the introduction of high gentleman, one piece ordinary unit of thoughts but the intersection of Zambia and medicine, its market price is about 20000 yuan, explaining and calculating according to medicines, each ordinary patient needs to use medicine of one to two bottles at least every week, according to this calculation, if there is no company to offer, each patient will pay 1,500,000 to 2 million yuan at least every year, could maintain basic health. Even say, it is an astronomical figure that this is not less than either to a rich family. Moreover dagger-axe thank the intersection of disease and patient must take medicine all the life . " Income in one year could buy two medicines too at our home. "

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